Recently we took Hayden off milk as a test to see if we could help reduce his hyperactivity and help him to get some much needed rest. Hayden is an Epileptic, diagnosed with Benign Rolandic Epilepsy, primarily Nocturnal Seizures, a couple years back. He had a few seizures at the very beginning of his diagnosis and then they stopped. About 6 months ago the seizures resumed. A side affect of his seizures is hyperactivity. The boy bounces off the walls, he is exhausted and it takes a few days for his body to get back to normal after a seizure.
Some studies have shown children with his condition could do better with removing certain foods from their diets. Dairy, Soy, Gluten, and any artificial anything are on the list of items to remove. Removing all dairy from his diet is a very new thing for us. And it is a real difficult challenge for me. It’s a challenge in that, dairy permeates just about every part of our diet. Have you ever stopped to consider just exactly how many things have dairy or a dairy product in them? Do it. Spend some time reading labels and you will be astounded. No, flabbergasted. It’s overwhelming really just how much we love
our dairy.
I am a baker. I love to bake. When I bake I insist on using real butter. I am totally 100% against margarine. It’s awful. It’s evil. It’s an abomination against the beauty that is butter. When Paula Dean fried butter on her show I thought to myself, mmmmmmmm. I bet that was yummy. Except when watching the show I pictured a little bit of fry bread wrapped around that little exquisite pat of butter before it was fried. Ok that may be a little extreme, but just picture in your mind’s eye you popping a warm bread dough ball in your mouth and the buttery goodness bursting free. Sinful. Simply sinful.
Butter is just the beginning too! Don’t get me started on cheese. Think of all the wonderful things we top cheese with. Oooey gooey pizza with that wonderful, stretchy, melty, stringy mozzarella just begging to be consumed. Or how about homemade macaroni and cheese made with a triple combination of sharp cheddar, Monterey jack, and mozzarella cheeses. The first step of this wonderful symphony of cheeses is to begin with a béchamel sauce. What is a béchamel sauce you ask??? Quite simply a roux of butter, milk, and flour, & that is before you add the cheese and bake this delectable concoction!
Have you ever considered cream? Real cream. As in whipped cream. We use whipped cream to top most of our decadent desserts. A Hot Fudge Sundae is not complete without its white mountain of freshly whipped cream covering your, what? Ice Cream. What’s Ice cream made of? You guessed it! Cream. Oh and that hot fudge, they used cream in that as well to give it that yummy creamy consistency. Want some coffee? Would you like some cream with that? Cream of broccoli soup, or my absolute favorite Clam Chowder.
Consider if you will the things we use dairy to top our foods with; corn on the cob, steamed rice, steamed veggies, bread, toast, mashed potatoes, and sometimes steak to give it that boost of flavor that sends us over the moon. We use butter to dip things in like crab or lobster, steamed artichokes in a butter garlic sauce. Sour cream for your nachos or enchiladas. Yogurt; frozen, regular, and greek. The list goes on and on. Now you understand why this is such a challenge for a foodie such as myself and my family. I am not a short order cook! I now find I am cooking two separate meals. One for us and a similar one for the boy but with changes, some good, some eh. Some items are completely off the menu for us. That thick and perfectly creamy chowder with fresh clams, Clam Chowder is a thing of the past for us now. My heart broke a little in writing that.
Now when I purchase milk for the family I also purchase Almond Milk for the boy. He has his own special “chocolate sauce” for milk and putting on top of his coconut milk vanilla ice cream. The odyssey for finding chocolate chip morsels that were both dairy and soy free was monumental but finally achieved. Now he can have his favorite trail mix, except it will be home made. I have not yet tried baking chocolate chip cookies for him. As I may just die a little in the process.
I think I will always struggle with this topic. And why not? I love my dairy too! This diet change for the boy is affecting me emotionally, simply because of my love for food and all the yummy things in it. The soy part will be the easiest thing for me to give up. He may miss the edamame and he definitely missed the soy sauce yesterday at sushi but I think he will survive. Now the gluten on the other hand may be the straw that breaks the camel’s back. In this scenario I am the camel just so you know. We love our bread here. Sometimes it’s the meal. A little hunk of fresh out of the oven bread dipped in some
olive oil and balsamic vinegar or dare she say it….butter [gasp]. There are some gluten free options available but I’ve tried them and I have to say…..bleh!
Luckily we don’t have to go there just yet. We are slowly stepping him down, slowly incorporating gluten free products in his diet. I have a few more weeks before I have to re-think anything with flour in it. Has this helped Hayden at all? I struggle to answer the question honestly. But yes. This one monumental adjustment has changed his physical appearance. The red blotches that have been a fixture on his person for too long a time are gone. He is slowing down and paying more attention. I realize when we remove gluten completely from his diet we should see another improvement in that he will be
able to focus better. Do I struggle with this new diet? Yes. Do I hate it? With every fiber of my being. Do I see a positive change in my son? Absolutely! Like it or not this diet seems to be working for him and we are more than willing to continue the slow removal of these foodstuffs from his diet. He is our son after all, and we only want what is best for him.
I am going to do my job as his mother and do what I can to make his life a little easier. Hopefully we are on the right path. Hopefully we will not have to resort to medication in order to control his seizures, and hopefully by the grace of God above his seizures will not escalate into another form of epilepsy. It is all in God’s hands really. What’s in my hands? Well, now my next course of action is to find some good vegan recipes for his favorite desserts! I hope I don’t die a little bit more in the process!
As my Granpa used to say “See ya round like a donut!”, SoCal Marisa